The abbreviated list below is provided for information only as a source for additional resources. Also, click on the link at the end for additional information organizations.
The Musella Foundation – www.virtualtrials.com
Organization dedicated to improving the quality of life and survival times for brain tumor patients by using computer technology to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research. The Virtual Trials website is maintained by the Musella Foundation.
National Cancer Institute – U.S. National Institutes of Health – www.cancer.gov
The Healing Exchange BRAIN TRUST (T.H.E. BRAIN TRUST) – www.braintrust.org
Helps people communicate about brain tumors and related conditions via the Internet to promote a healing exchange of information and support. They run more than a dozen online support groups and distribute over 300,000 emails weekly. They serve over 2,200 people through their groups daily. This is a great networking opportunity for patients, family and friends, and professionals.
The American Brain Tumor Association – www.abta.org
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. They have a wide range of resources available and an especially helpful “Help with Side Effects” section.
The Brain Tumor Action Network – www.btan.org
The Brain Tumor Action Network was established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends. They are very active in Brain Tumor Advocacy and taking political and personal action to make a difference.
The Central Brain Tumor Registry of the United States (CBTRUS) – www.cbtrus.org
A non-profit corporation which gathers and disseminates epidemiologic data on primary brain tumors in order to facilitate research and establish awareness of the disease. This site is an excellent source for comprehensive, statistical data on primary brain tumors.
There are a number of other great information sources for brain tumors. Go here to find out more.