The abbreviated list below is provided for information only as a source for additional resources. Also, click on the link at the end for additional information organizations.
The Musella Foundation – www.virtualtrials.com
Organization dedicated to improving the quality of life and survival times for brain tumor patients by using computer technology to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research. The Virtual Trials website is maintained by the Musella Foundation.
National Cancer Institute – U.S. National Institutes of Health – www.cancer.gov
The Healing Exchange BRAIN TRUST (T.H.E. BRAIN TRUST) – www.braintrust.org
Helps people communicate about brain tumors and related conditions via the Internet to promote a healing exchange of information and support. They run more than a dozen online support groups and distribute over 300,000 emails weekly. They serve over 2,200 people through their groups daily. This is a great networking opportunity for patients, family and friends, and professionals.
The American Brain Tumor Association – www.abta.org
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. They have a wide range of resources available and an especially helpful “Help with Side Effects” section.
The Brain Tumor Action Network – www.btan.org
The Brain Tumor Action Network was established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends. They are very active in Brain Tumor Advocacy and taking political and personal action to make a difference.
The Central Brain Tumor Registry of the United States (CBTRUS) – www.cbtrus.org
A non-profit corporation which gathers and disseminates epidemiologic data on primary brain tumors in order to facilitate research and establish awareness of the disease. This site is an excellent source for comprehensive, statistical data on primary brain tumors.
Katie’s Kids for the Cure/ National Fund for Pediatric Brain Tumor Research – http://www.katieskids.org
Funds innovative and creative brain tumor research, both clinical and basic science.
Have a Chance – http://www.haveachance.org/
Have A Chance is a not-for-profit organization dedicated to helping individuals and families impacted by a brain tumor find the most appropriate and innovative therapies. Have A Chance is committed to researching treatments that touch on the four elements of healing: conventional, alternative, spiritual and psychological.
The Surveillance, Epidemiology, and End Results (SEER) – http://www.seer.cancer.gov
The SEER Program of the National Cancer Institute is an authoritative source of information on cancer incidence and survival in the United States. CBTRUS works collaboratively with this registry and their collection of data on Primary Brain Tumors. SEER only collects data on Malignant Brain Tumors.
The International Agency of Research on Cancer (IARC) – www.iarc.fr
The IARC is part of the World Health Organization. It works to coordinate and conduct research on the causes of human cancer, the mechanisms of carcinogenesis, and to develop scientific strategies for cancer control. CBTRUS also works with this organization that collects data on malignant brain tumors only.
Accelerate Brain Cancer Cure – www.abc2.org
Accelerate Brain Cancer Cure has a singular focus – to hasten the discovery of a cure for brain cancer and inspires new hope for a cure by using a results-driven business model to bring more treatments to patients, stimulate research & development and otherwise support the accelerated development of new therapies for brain cancer.
The National Brain Tumor Society (NBTS) – www.braintumor.org
Dedicated to promoting a cure for brain tumors, improving quality of life and giving hope to the brain tumor community by funding research and providing patient resources, information and education. The NBTS sponsors Brain Tumor and Angel Adventure Walks in many different cities across the U.S. that raise awareness and funds for research and patient services. Many friends and family of Nick’s participate and volunteer in the DFW Brain Tumor and Angel Adventure Walk each November held at Trinity Park in Ft. Worth. The Nick Gonzales Foundation also established a research grant with the NBTS in Nick’s honor specifically focusing on studies dedicated to glioblastoma brain tumors.
The Grey Ribbon Crusade and Heroes of Hope – www.greyribboncrusade.org
The Heroes of Hope initiative seeks to create dynamic action in the drive for funding of brain tumor research through a synergistic approach. The program invites the general public and those in the brain tumor community to join the Grey Ribbon Crusade and become part of a united force against brain tumors to increase visibility through a strong national brand allowing the utilization of a combined scale of accomplishments and resources while preserving individual and organizational goals, without additional layers of financial commitment. The Nick Gonzales Foundation for Brain Tumor Research is a proud member of the Grey Ribbon Crusade.
The Brad Kaminsky Foundation – www.tbkf.org
Their mission is to raise awareness of brain tumors and raise funds for research so that effective treatments and A CURE may be found. They are also dedicated to providing support and resources to those affected by the disease, and work with other organizations for the betterment of patients and families to bring about a cure as quickly as possible.
BRAIN – U.S. National Institutes of Health – www.ninds.nih.gov
Information on neurological disorders and research programs funded by the National Institute of Neurological Disorders and Stroke via the Institute’s Brain Resources and Information Network (BRAIN).
The American Brain Tumor Association – www.abta.org
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. They have a wide range of resources available and an especially helpful “Help with Side Effects” section.
Grey Matters North Texas Brain Tumor Support Group – www.greymatters.us
Non-profit organization dedicated to providing emotional and logistical support to brain tumor survivors and families. Our Goal is to help them communicate easily with doctors and other health care professionals, become more informed medical consumers and feel more comfortable with the medical environment in which they now find themselves. We support research so that this devastating disease can be eradicated forever.
CancerCare – www.cancercare.org
CancerCare is a national nonprofit organization that provides free, professional support services for anyone affected by cancer. CancerCare offers free, professionally facilitated telephone support groups for people living with a glioblastoma. For more information call 1-800-813-HOPE or email info@cancercare.org.
Children’s Brain Tumor Foundation – www.cbtf.org
Works to improve treatment, quality of life, and long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy programs.
The Tim & Tom Gullikson Foundation – www.gulliksonfoundation.org
The Tim & Tom Gullikson Foundation assists brain-tumor patients and families in managing the physical, emotional and social challenges presented by the illness.
The Brain Tumor Action Network – www.btan.org
The Brain Tumor Action Network was established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends. They are very active in Brain Tumor Advocacy and taking political and personal action to make a difference.
The International Brain Tumor Alliance (IBTA) – www.theibta.org
Seeks to be an alliance of the support, advocacy and information groups for brain tumor patients and caregivers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumors.
Ragan’s Hope – www.RagansHope.com
Ragan’s Hope helps families whose children (up to age 18) are fighting a disease and/or hospitalized. They provide meals, assistance with hospital visits, assistance with other children, prayer, household needs, financial/emotional support and more.
Gregg Pearson Foundation – www.GreggPearson.org
Gregg Pearson Foundation helps brain tumor survivors with living expenses while they are battling a brain tumor. “Honoring Gregg by helping others”.
